Sally's World

As you know, we have been waiting and chasing some of Deions hospital results for a while now. I am continually told that 'when there is something to tell, I shall be the first to know'...apparently not...

I rang up today to find out the results of a test Deion had in May...yes, do not adjust your screens, that was MAY! six whole months.

I demanded to speak to someone today, and with a sigh, they pulled Deions notes up on the computer...

"Oh," she said
"What???" I said, I went cold, broke out in a sweat and I think my heart stopped beating...
"Oh, well, we've had them back for a while, they were normal."

Of course, my relief that the result was normal meant I forgot to have a moan about someone actually neglecting to tell us this bit of information.

Wouldn't it be nice if just once, someone thought the parents had a right to know some vital piece of information about their child???

I guess I had better now phone up for the other four sets of results, they may be back too!!!!!

I got a phone call today, offering Deion a cancellation appointment for tomorrow...of course, I was thrilled, it hardly ever happens that you get an appointment earlier than you expect.

The woman did double check that I didn't mind coming, and repeated the date 'Friday the thirteenth.'

"Ermm, no, no problem," I said a Little confused.

It turns out that the person who cancelled, did so because of the date and the other person who has been waiting longer than us, didn't want the appointment because of the date.

I don't know about you, but this seems a bit ridiculous to me, what do some people do, sit indoors wrapped in cotton wool that day.

My view is 'superstitions only have power if you believe in them'

I don't believe in them.

But, hey, I guess, for Deion's sake, I should be glad some people do!

i need to ring the Guinness book of world records, the BBC, the queen...i think that today we have achieved a new world record!

Deion was not best pleased when I woke him at 6.30 on a non-school day, but we had an 8.30 appointment. Deion had a fitting for his new soft splint (stops his left wrist becoming to bent over), then went straight into a 9.15 appointment to pick up his new hard splint (wears this a night for same reason) then we went off to the dentist for 10.30 (all good) then off to physio for 11.30 (hard work, new exercises from muscle wastage when he was ill) we had to be at the doctors by 12, then to the nurse by 12.30 for a blood test. then i grabbed him some lunch (worthless no good McDonald's as a bribe) and we had to be at the dietitian for 1.45 (more supplements cos lost weight while oinking with swine flu) off to the hospital for his chest x-ray (still slight chest infection) and then off to the wheelchair clinic by 3pm to be fitted for a new harness. had to be home by 4.30 as the guy was coming to service Deion's hospital bed...

whats that 10? 11? appointments, ridiculous, gotta be a record! none of these places are more than 4 miles from home, yet somehow I've clocked up 70 miles in the car today???

Why you ask?? (me too) it just worked out that way, all we have to do tomorrow is go to the new school to make sure they have the right toilet chair, drop the car in so they can fix the ramp and go grocery shopping....oh, and Deions got friends round for tea...will seem quiet in comparison.

Well it looks like another busy week for me, the post has just arrived and in it are no less than seven appointments for Deion, I’ll have to rearrange at least one of them, unless I can figure out a way of being in two places at once!!! Haven’t managed that yet!

I am just writing this blog, because I was touched today by someone’s simple act of kindness.

The day didn’t start off great; Deion had a couple of hospital appointments; we had our usual two hour wait for the first and our usual tussle over results at the second, I left knowing nothing more than I did before we went.

Then as we had an hour to spare between the hospital appointments and Deion’s Physio therapist appointment, I took Deion shopping so he could spend his birthday money.

We inevitably ended up in the game shop, because somehow he ended up with about seventy thousand pounds worth of game card vouchers (slight exaggeration!) for his birthday.

I then got his feet measured and had to hand over roughly the equivalent of our monthly shopping budget for a pair of trainers just because they were a particular brand and colour…great.

We then gave up in pound land, as the isles are too small for his wheelchair to get around, of course we had the requisite number of doors slammed in our face, the usual amount of people moaning about Deion getting in the way and of course I had expended an extraordinary amount of energy in NOT thumping at least twenty people for being so bloody rude!

So I just didn’t have the energy to argue when he asked for a MacDonald’s for lunch. He couldn’t believe his luck when I didn’t lecture him about trans fats and nitrates (yep, I’m that sad), but instead just held the door open for him to go on in.

While we were trying to fight our way through the crowds of schoolchildren (that surely should have been in school anyway) Deion got walked into, banged and scowled at about ten times. The usual really… people just don’t see him, they are only looking at eye level I guess!

Then a lady who worked there told us to go and sit down and she would get our food for us to save us queuing. This was new to me, and not something that is normal practice in MacDonald’s I believe. But we followed her to a table, she wiped it down, asked Deion what he wanted, and then went off to get his happy meal. She came back literally a few moments later, gave us the food and handed me my change.

Deion and I, dumb struck, thanked her profusely.

She told us it was her pleasure, she has a daughter in a wheelchair and knows how hard it is, but it was so refreshing, because she actually spoke to Deion instead of over him, instantly knowing the wheelchair didn’t make him stupid. She was lovely and it made a huge difference to what is normally a nightmare of pushing and shoving and ‘excuse mes’ into something quite relaxing.

I’m sure to her it was nothing more than a small act of kindness, but to us it was beyond nice, and she made Deion feel really special.

“Wasn’t she a lovely lady mum,” Deion said as we left.
“Yes she was,” I said.
“I wish more people were like her don’t you mum?”

Yes I do!

Take care

Sal & Deion xxxx