Tuesday, 28 April 2009
One things for sure, the rule book goes out of the window when you have a child with special needs.
It amazes me how different things are. When Jordan and Robyn went to secondary school it was easy really, so we traipsed round all the schools in our catchment area, weighed up all the pros and cons, talked to teachers, pupils, analysed the exam results… essentially it was pretty simple, and they’ve been very happy with the choices we all made…
So obviously with Deion, we got embroiled in a big fight about which school, because somehow the education department thought that having special needs meant you didn’t have as much right to choose, but we got our own way in the end…then there was the fight to get suitable toileting facilities, anyone would think I was asking for a space rocket, not simply suitable toileting facilities…I’d probably have more have more luck and less fuss getting my hands on a bloody space rocket….note to self, ring NASA!!!
Next came transport…think we’re almost there on that point…the school are being great and we are ironing out any other issues…relatively small regarding what happens in a fire drill, desk heights, classroom organisation, low coat hooks, games and PE…..all surmountable issues…
But here comes the bit I don’t get, the thing I fear we’ll never alter, and that’s ignorance. Now, when JJ and Robyn went off to secondary school, not a single person ever asked me if they would be taking exams when they left school…the question of them leaving with a decent education went without saying…it is expected no???
So explain to me why someone would ask me (with a scoff of derision no less) if I thought Deion would really get any GCSE’s.
I get Deion is different... $h!t, Deion gets he’s different…but since when did different mean stupid????
As parents, when your child has a disability, yes, you adjust your goals and expectations if you like…it’s not the first steps you crave, it’s a new electric wheelchair so that he can drive himself. Okay, its not football, but wheelchair basketball, we’ve been told the likelihood is that Deion wont be able to have children of his own…so we might look forward to the day he fosters or adopts a child, he may chose not to have children.
But we are blessed, and Deion has merely physical limitations, not academic ones…hence the fact he can attend a mainstream school, hence the fact he is so bright its scary, has a sarcastic/cheeky/okay, if I’m honest an evil streak to rival Dennis the Menace….why would we think he wont be taking exams…don’t all kids in mainstream school take exams…is it not what is expected????
So to the woman…who I am also sending this post to also, who works with children in special education, who is supposed to be helping and supporting us…quite frankly up yours!!! Is your child taking exams…what’s that?...no kids, oh, could have guessed that…you probably couldn’t raise a cat! I’m sure when Deion graduates from University…you’ll still be sat behind that desk, not having a clue about real life…
Deion knows he can do whatever he wants in life…the people that know and love him spend a lot of time and energy making sure he knows he has no limitations in life…so when someone, who should quite frankly know better, comes along and has the ability to undo all that work in one sentence…it makes me so mad I could spit…
Needless to say, we wont be having anything to do with this person in future…after all, I would like to see Deion graduate from college, instead of serving a prison sentence for murder!!!
And just for the record, that’s not a threat, I’m merely venting my anger and frustration at your incompetence, ignorance and stupidity!