I'm a mum first before anything else. I run my own business and am starting up a charity in the name of my late son Aaron. But that’s only a few of the things I do. I am a very motivated person, I jump in with both feet and give 1000% to everything I do. I only sleep 4 hours a night, but could still do with another 3 hours in the day. Life’s a little mad, but I like it that way. There are so many things I want to achieve for myself and my children, I make sure I do something towards that every day. I treat people only the way I wish to be treated, and even though it means I get stepped on sometimes, I won't change. It's who I am, loving, caring, generous (I hope!!!)
When our eldest son Aaron was diagnosed with a muscle wasting condition, we took him to swim with wild dolphins in the Bahamas, words can’t describe the benefits it had on all of us, and we went back year after year as it kept him strong, Deion showed marked improvement, and it was just about the most peaceful place on earth, so we love it there.
Paris
Paris Surprise
I took Dave to Paris for the weekend as a surprise for his 40th birthday last year, it was the first time either of us had been and we loved it. Also the first time we have both been away from the children for two nights...it was so relaxing, and such a beautiful city, The Louvre, The Eiffel Tower, The Arch de Triumph, Notre Dame Cathedral, all amazing.
Shows I love To Watch... ER
Smallville
Americas Next Top Model
Grey's Anatomy
And Even Though I've Seen Every Episode A Hundred Times...Friends
Fund Raising...Pub Crawl!
Here is a rather embarrassing picture of a group of us doing a fancy dress pub crawl to raise money (all in the name of charity I promise). We raised several hundred pounds after visiting about ten pubs in the Lewisham and Bromley area (and I'm sure the success we had was nothing to do with the short skirts we were all wearing at the time!!) The proceeds went to help a little girl called Danielle go off to swim with the dolphins in Australia. That's Danielle's Mum on the Left, and her Nan second from the right.
Bungeeeeee...
Here is a picture of me throwing myself out of a crane that happened to be 300 foot up in the air. Not one for the light hearted among us. Although this was only the first bungee jump I did, along with eleven other mad people, including two of my brothers (you can imagine how pleased my Mum was, she was far more nervous than we were!). I went on to do an even higher one the following year to help another child and her family go on a dolphin swimming and their dream holiday.
If you know of any bungee jumps (properly organised and registered ones only please) that are over four hundred feet high I would love to know about it. It's a dare I have been given, and I never ever back down on a challenge. In fact I know a whole bunch of mad people who are up for just about anything daring, death defying and really really stupid! So let us know if you have any great (mad) ideas of things for us to try and we will do our best
Head Shaving...
And here is a photo of probably the most daring thing I have done to date......shaving my head! I think you'll agree that it is not really a good look for me!! But seven of us did this in the end and we raised a lot of money, so it was worth it (just!)!! although if I ever do it again it wont be in the middle of winter, it was December here and snowing, honestly, what on earth were we thinking??
FAT LOSS TIP OF THE DAY
PUT DOWN THE CAKE!!!!
Quote Of The Day
DON'T SPEAK TO ME UNTIL I'VE HAD MY COFFEE!!!
FIND A VOICE
Supports Children and Adults with Communication Difficulties.
WE AIM TO HELP THEM LITERALLY
'Find A Voice'
We provide on-line information to everyone in the UK and personal support to individuals, their carers and professionals who live in Kent and Medway.
More than a million people in the UK today have some kind of speech difficulty; and about half a million of those have significant problems in speaking and communicating.
Communication needs can be caused by many disabilities including:
Cerebral Palsy Down's Syndrome Global Dyspraxia Autistic Spectrum Disorders.
I laughed until my sides hurt, the best...the absolute funniest thing, is that he thinks he's so damn cool. Honestly, when his shoes flew off, I had trouble composing myself. Superb!
I cannot believe that I have actually written 500 posts. Okay, okay, some some weren't mine, some were e-mails or quotes or videos that I couldn't resist sharing. But 500 times I have clicked on that publish button and something that says something about me is out there on the world wide web.
Looking back, what makes me smile is how different my blog is to what I expected.
Originally, I was going to do a weekly update, talking about life as a parent with special needs children, about how to live with the loss of a child...I thought I was going to be giving support and advice to other parents like me.
And to a certain degree I think I have, sharing information is the best way to deal with many aspects of special needs and disability. But I have received just as much information back.
But what I didn't expect was to get into it and write about everything and anything that's on my mind, and what is even more amazing is the love and support I have received from my fellow bloggers. I didn't expect to love reading about the lives of people from all over the world, I didn't expect to be able to relate quite so much.
I feel less alone, I have an outlet, I can share the little things that make me laugh (or cry), things that otherwise go unsaid. I can have a bad day, rant, scream, cry, swear, and all I get back is support.
My biggest thanks has to be to Trojan of Trojan's Corner, he is the one that believed in me and what I had to say enough to encourage me to blog in the first place.
Here's to the next 500 if you can stand me for that long!!!!
After three weeks in the Garden of Eden, God came to visit Eve.
'So, how is everything going?' inquired God.
'It is all so beautiful, God,' she replied. 'The sunrises and sunsets are breathtaking, the smells, the sights, everything is wonderful, but I have just one problem.. It's these breasts you have given me. The middle one pushes the other two out and I am constantly knocking them with my arms, catching them on branches and snagging them on bushes. They're a real pain.'
And Eve went on to tell God that since many other parts of her body came in pairs, such as her limbs, eyes, ears, etc. She felt that having only two breasts might leave her body more symmetrically balanced'.
'That's a fair point,' replied God, 'But it was my first shot at this, you know. I gave the animals six breasts, so I figured that you needed only half of those, but I see that you are right. I will fix it up right away.'
And God reached down, removed the middle breast and tossed it into the bushes
Three weeks passed and God once again visited Eve in the Garden of Eden.
'Well, Eve, how is my favorite creation?'
'Just fantastic,' she replied, 'But for one oversight. You see, all the animals are paired off. The ewe has a ram and the cow has her bull. All the animals have a mate except me. I feel so alone.'
God though for a moment and said, 'You know, Eve, you are right. How could I have overlooked this? You do need a mate and I will immediately create a man from a part of you.
Let's see.... where did I put that useless tit?'
Now doesn't THAT make more sense than all that crap about the rib?
I have written posts about the uncertainty surrounding Deion's condition before, and the reason I haven't spoken about it for a while, is simply because there has been nothing new to tell, no new news, no results. It's a bit like having something hanging over us, actually, its exactly that.
So our lovely, lovely consultant has been pulling some strings to get some stuff done. It means that Deion is going to be spending most of his half term back and forth to hospital appointments, but I'm sure he'll think of a way to compensate this hardship...its gonna cost me i just know it!
Deion had his hip and knee x-ray on Friday, as he is in some pain, we need to know why. We have a full physio assessment today, later this week, we have a meeting about botox to loosen his thigh muscles, a neurology appointment to discus a muscle biopsy, some investigations about the deterioration in his swallowing, and we need to figure out how to get two litres of fluid a day into a child that cannot swallow liquid effectively any longer.
What fun!
I know I'm not ready for a couple of the suggestions they are going to make about Deion's swallowing, they are not happy that we have to get so many calories into Deion, and maintaining is weight is harder all the time.
Hopefully we will get some answers this time. I have to remind myself that deion is tougher than I think. Whatever happens, I know he/we can deal with it.
The future is purchased by the present Samuel Jackson
Samuel Jackson is one of my husbands favourite actors, when you see him in interviews he seems to have a good balance on life, and this quote, though simplicity itself, is great.
There not only needs to be far more parking at hospitals, but there needs to be more disabled spaces, and we should not have to pay extortionate amounts of money for using them.
Deion had to go and have his hips and knees x-rayed as he is getting some pain, not that uncommon for wheelchair users, but we need to check it out.
So we merrily went off to the hospital. It took us over half an hour to park, and no! not because I can't drive/park e.t.c but because there was just no room. This was at ten to nine this morning, so you'd think it would still be fairly quiet...nope!
There should be more larger spaces to accommodate wider vehicles so we have enough space so that we can open the door more than an inch and a half. And there certainly not be ridiculously low height restrictions so that anything higher than a go kart can't get under (of course the docs sports cars can all fit under rather nicely)...disabled vehicles are big you guys...think it through.
So off we go to our appointment, which really should have been quick, but we waited the obligatory hour and a half to go in. Although how they could possibly be running an hour and a half late at nine twenty, when the x-ray department only opens at nine is beyond me... obviously we have a bit of lifting on and off the bed to do for Deion, no such thing as a hoist in a hospital x-ray room, that would make waaay too much sense!
So two hours and two minutes later I went back to the car, put my ticket in the machine and oh, guess what, its three pounds an hour to park, but I had to pay nine pounds because I went two minutes over the hour....fair...NO!!!
Of course, my inability to keep my mouth shut about such matters meant I was duty bound to make a complaint to the parking control officer. He agreed with me totally (which I hated because I could hardly shout at the man for being nice and agreeing with me now could I???) and he gave me a form to fill in and send off to make a complaint. Which, yes, I will do, even though I know it will do absolutely nothing. And I know this because I have already filled in about seven of these forms before.
This is being circulated as a warning, please read, people need to be aware. I have sent it to everyone I know on e-mail as it is not common knowledge.
Yesterday, my youngest daughter, Halle who is just 4 years old, was rushed to the ER by her father for being severely lethargic and incoherent in her classroom.
He was called to her school by the school secretary who said that she was 'VERY VERY SICK'! He told me that when he arrived at her classroom, Halle was barely sitting in the chair. She couldn't hold her own head up and when he looked into her eyes, she couldn't focus them. He immediately scooped her up and rushed her to the closest ER, and then called me.
When he got there, they ran blood test after blood test and did x-rays, every test imaginable. Her white blood cell count was normal, nothing was out of the ordinary.
When I arrived at the ER, the doctor there told us that he had done everything that he could do so he was transferring her to Saint Francis Hospital for further tests.
Right as we were leaving in the ambulance, her teacher arrived at the ER and told us that after questioning Halle 's classmates, She had found out that our little girl had licked liquid hand sanitizer off of her hands!!!
Hand sanitizer, of all things. But it makes sense. These days they have all kinds of different scents and flavors and when you have a curious child, they are going to put all kinds of things into their mouths. When we arrived at the Saint Francis' HospitalER, we told the ER Doctor there to check her blood alcohol level, and yes we did get weird looks, but they did it.
The results showed her blood alcohol level was 85% -- six hours after we first took her.. There's no telling what it would have been if we would have requested it at the first ER. Since then, her school and a few surrounding schools have taken the liquid hand sanitizers out of all the lower grade classes, but what's to stop middle and high schoolers from ingesting this stuff? After doing research on the Internet, we found out that it only takes about 3 squirts of the stuff ingested to be fatal to a toddler. For her blood alcohol level to be so high, it would be like someone her size drinking120 proof liquor. So PLEASE PLEASE don't disregard this because we don't everwant another family to go through what ours has gone through.
My kids loved this song, and when they saw this video on you tube they laughed and laughed. Deion laughed so hard I had to remind him to breathe. I love this film anyway, despite having seen it about a thousand times.
I don't know about you, but it makes me laugh when rich, famous, nanny hiring, celebs who employ enough staff to run a small country describe themselves as single mothers. It just doesn't pack the same punch for me.
"Appearing on CBS' Late Show with David Letterman in the US, the performer was asked what it was like being a single parent."
There are times (like most of the time) when i feel like i am the only sane person in my house. Okay, okay, I know there is evidence to the contrary i.e. the giant football, the bungee jump, the cake...whatever!
But it seems there are just some things you can't get through to my family....
Like...if you leave your clothes in a heap on the bedroom floor, it does not automatically follow that the next day, they will not be washed and ironed and in your closet.
Or...once you have eaten all the food, it does not automatically replace itself, i do not have a magic refrigerator.
Even simple things, like, i can't be in two (or three) places at once, money doesn't grow on trees, and i only have one pair of hands.
Whether or not the parents were involved, one thing is for sure, this child and family did not get the support they needed. Its yet another in a long line of cases where a child slips through the net and loses their Innocent young life needlessly.
"The parents of an eight-year-old girl found hanged in her bedroom have been arrested in connection with her death. Simon and Susan Moody were interviewed under caution immediately after finding Charlotte Avenall's body at their home in Mansfield last month. The young girl, who had severe learning disabilities, was discovered hanged in her bedroom on September 12. Mr Moody, 32, and his 24-year-old wife Susan have been arrested in connection with her death. Following her death, Nottinghamshire County Council's social services department said it would be reviewing the care and support it offered Charlotte and her family. She was known to social services from birth and attended Birklands Primary School in nearby Warsop."
My daughter Robyn had a Sunday to herself, no school, homework up to date, no karate /horse riding/work experience/extra curricular lessons....so how does she chose to spend it...like this....
Robyn had a school art trip to the Victoria and Albert Museum last week, however, time was limited, so she (being the perfectionist she is) wanted to go back to make sure her sketches were accurate, and to maybe add a few more.
I can't complain, she wants it to be right bless her.
Its a lovely museum, I haven't been for years, I loved the buddahs, so here are a few pictures of our favourite things.
my daughter had a special evening at school on Wednesday, her teachers want her to do triple sciences as she's so clever...i know I'm gushing, but, my kids are brilliant, so i have that right!!!!
it was actually quite a good evening, a talk followed by some demonstrations of chemical reactions.
only we were not expecting an explosion, everyone in the hall jumped, a few gasped, one yelped, but only one person yelled F**K at the top of their lungs....yep, me...my daughter is not happy, and probably concerned how it looks for her...oh well... I'm just grateful i didn't pee my pants (it was close!)
I can't believe its a year to the day that I started blogging. My good Friend Trojan,(Trojan's Corner) not only suggested it, helped me set it up (as in...he did most of the work lol) and he has given me nothing but encouragement all along.
I can hardly remember life before blogging now. I have been able to reach out to so many people, and have been helped and supported by more people, from more places than I could ever have imagined.
I was going to only talk about issues that surround being a parent of children with special needs...
Well, that all went out the window, i chat about anything and everything, this is my online diary, thought process and has been great for meeting new people...
i seem to be continuously apologising for ignoring everyone. i can't say how much i miss spending a little time on all of your blogs each day, but there just doesn't seem to be a spare minute. i used to spend those nighttime hours when i couldn't sleep on the blog...now I'm out working and spending my time with people far less savory than all of you.
gosh, i thought i was busy before i am now looking back on my life a couple of months ago and feeling that it was quite leisurely!!!!
I am trying to get it to balance out, and I'll be back commenting and posting much more...
right off to work...i think the phrase 'you'll meet yourself coming backwards' was meant for me.
I am also concerned, as one phrase pops up alot! and that's 'no rest for the wicked'...okay, i don't think I'm wicked, but its starting to worry me lol!
Now, you would think that having a paying job (as well as all the other stuff you do, which roughly equates to five jobs anyway...but thats a blog post for another day!) would mean that you would be better off financially.
When you sit down and work out the cost of actually going back to work, decent clothes that aren't elasticated and designed not to show childrens food and mess, shoes that look smart rather than comfy, travel, childcare, and take out for dinner on days when you just havent got to the supermarket or are not home....it means financially you barely break even.
Its actually cheaper to stay home, and then as a bonus you don't have anyone moaning at you because the dry cleaning isn't picked up, or the printers out of ink, or clothes aren't ironed on the right day, or we're out of the right t-bags, or the house is a bomb site.
You can hardly blame parents for staying home can you? It's the cheaper option!
This story has been all over the news the last couple of days. It highlights the depravity of some members of society... three people have been charged with horrific child abuse and distributing pornographic images of children...one of them is a nursery worker, all of them are parents.
Now police and social workers are trying to work out who the children are in the images. Aparently so bad, they could not even describe them for the press.
It is the worst kind of abuse of trust, abusing the most vulnerable. Abusing innocent children while their parents feel they are in a safe, secure, loving enviroment.
Some freinds and I were talking about this, and one felt that it almsot seems worse when its women involved, is this true????
"Female sex abuse often remains hidden behind the veil of happy family life and the apparently normal relationship between mother and child so victims are less likely to come forward. And those in contact with the family are less likely to notice what is happening. This combined with the stigma and silence surrounding the issue means the result is chronic under-reporting. The statistics in this field are dangerously inadequate, but it is estimated that at least 25% of victims of sexual abuse are abused by women. Two years ago the Behavioural Analysis Unit at CEOP (The Child Expoloitation and Online Protection taskforce) began a study into female sex offenders. The results are still several years away, but Graham Hill, leading the team, expects the findings to show a high incidence of female sex offending. These monsters are due to be sentenced next month. one things for sure, whatever happens to them, will be less than they deserve.
My heart goes out to the babies and their families, imagine how hard it will be for them to let those children out of their sight again, imagine how hard it will be to ever trust anyone again. As parents we are told to show preference to well run, registered nurseries rather than child minders... tell these parents that!
Three different people sent me this...do you think they are trying to tell me something???
I posted it, because, you know when you see something, and it really gets to you, and you find it hilarious, and every time you think of it you laugh....this did that for me.
I just had to write and tell you about a recent experience.
A friend of mine has a distant aunt, they found each other on face book recently. It turns out that this aunt is a medium, a good one, she's been on TV, travelled all over the world doing this, some of her customers are famous people.
While she was talking to my friend, she told her that she could see a little boy, and told her to ask his mum to phone her...nothing else was said.
Well, I did phone, she arranged to phone me back another day at a quiet time...and I'm so glad she did. She knew things, that no-one else knew, she described my house, where I keep a box of Aaron's things, other mundane things he sees me doing. She named the names of his Friend's his favourite uncle, my grandparents...it was pretty special. She knew his favourite toys, teddy, food, games, it was amazing. There is not one thing she said that didn't mean something to me, even if it was confusing for her.
But most of all, the best thing, the thing that was indisputable was... when she described how she had had a mad day, was worn out, so she decided to go to leave me a message saying we would rearrange and go to bed instead...well, apparently she tried but Aaron wouldn't let her, she said he drove her crazy with his incessant 'ring my mum, ring my mum' she said it was like that scene out of Ghost when Patrick Swayze wants Whoopie Goldberg to phone Molly....
Of course, there isn't another person who ever existed as stubborn as Aaron, so this really made me smile. There are times when I feel Aaron, particular moments, and recently Dragon from mysterious creature told me how to contact aaron in dreams...this medium knew all about this and told me not to doubt it.
I feel calmer somehow, less worried that he is lost, or lonely, or not being looked after...and certainly there is no doubt he is with us all....
Aaron, born 5th December 1991, I became a mum to the most determined, forceful child to ever grace the planet. Aaron was the most loving child from the word go, he had an energy and zest for life I have never seen equalled, probably never will. Sadly after a long fight with a muscle wasting condition, Aaron passed away on 5th march 2006. He will be in our hearts and minds forever, and missed every single day, he is our angel, our brightest star and I wouldn’t change a moment.
Jordan
Jordan, born on 22nd July 1993, always an incredibly bright child, had to know the truth from a young age and always trying to get to the bottom of things. There was no fobbing him off with stalks bringing babies…too illogical. He always loved building things and even better…dismantling things; he is going to be an architect, and I could probably have told you that when he was 2!!! He is a black belt in karate, is fun loving, sociable, loves music and video games (what 15 year old doesn’t) and loves to argue with his sister…
Robyn
Robyn, born on 20th Sept 1994, I had three babies under three now and suddenly realised I must be insane. Good thing, Robyn was a sweet, good natured and almost angelic baby. She is determined (stubborn like her mum) and trying to give her dad a heart attack by wearing lipstick or mentioning boys names occasionally. She is tall and gorgeous and terrifying her father! I don’t worry, she has a black belt and a mean streak, no one will mess with her! She has dyslexia and has shown her strength and determination to overcome it and excel, she is helpful and loving unless fighting with her brother…
Deion
Deion, my teenie weenie, born on 17th Jan 1998, Deion was a preemie and has cerebral palsy as a result, but don’t be fooled into feeling sympathy, he’s a force to be reckoned with as he zooms around in his electric chair. He is cheeky in the extreme with a sense of humour way too well developed for his age. And the doctors could not have been more wrong when they told us he would never talk…we can’t shut him up…ever!...I often threaten to go and get my money back. He plays wheelchair basketball, loves football, video games and food.
The current issue of SEN Magazine includes articles from our Dyscalculia, Visual Impairment and Behaviour Specialists. There is a ten-page debate section focusing this issue on home education v. school education, and we have features on ADHD, sensory integration and Teens Plus, a pilot project running in Scotland. We also have a new point of view section written by a teacher and a parent. Plus! previews of Special Needs North and Naidex, and much, much more! Subscribe today and be SEN-aware.
My Awards
Yay, My First Award...Thanks Missy
My Second Hottie Award...It Must Be True!!!
Thanks Trojan
thankyou thankyou thankyou
Thanks Cozyflier
Yay, I'm Creative...
Thanks Becca
My Second Kreativ Award
Thanks Trojan, I'm honoured!
Award Time
Thank You Fine al Thoughts, I'm honoured.
Thanks Carebear!
Queen award!
I AM awesome...someone finally listened...Thanks JAM!!!
Thanks Maureen
Thank you, this ones cute
I'm Honoured
My All Time Favourite Film...Sorry, But it's Dirty Dancing...